This webinar aired on January 12, 2016 for members of the DataCure listserv. The webinar covered issues around sensitive data and how to establish a educational program to help researchers protect sensitive data while sharing results of their research.
The presenters were Brett Harnett, Director of the UC Center for Health Informatics ( http://www.med.uc.edu/chi) and Jonathan Petters Ph.D. Data Management Consultant at Johns Hopkins University ( http://dmp.data.jhu.edu/).
Presentation 1
- Brett Harnett- the process of de-identifying data especially data resulting from medical records, issues around de-identifying especially unstructured data, working with an IRB and future issues concerning data containing PHI.
Presentation 2
- Jonathan Petters - training for de-identifying human subjects data for sharing and developing a viable library service.
This use case appears in Curating Research Data V2, an ACRL publication edited by Lisa R Johnston. Both volumes of the book are available as open access editions at the following link. http://www.ala.org/acrl/publications/booksanddigitalresources/booksmonographs/catalog/publications
The use case examines the metadata contributed in a self-submission repository model and what changes were made in the metadata form to encourage researchers to contribute quality metadata.
This is the poster presented at the 2015 RDAP summit held in Minneapolis, MN. Based on the white paper Tiffany Grant and I wrote on data management best practices. In the white paper, we surveyed the literature to determine institutional best practices for providing research data services and proposed opportunities for UC Libraires.
Reference:
Grant T. and Koshoffer A.,
Research Data Management at Academic Research Institutions: An Evaluation of Best Practices and a Comparative Assessment of Practices and Opportunities at the University of Cincinnati.
This poster was presented at the 2016 Research Data Access and Preservation (RDAP) meeting. It examines the challenges and opportunities of a self submission institutional repository (IR), especially as they relate to dataset submission, and for both researchers and librarians. It also explores how researchers can maximize the impact of their works through an IR submission by including rich metadata and the links to other discovery systems. In particular the poster examines how Dr. Eric J. Tepe's submission to the IR is visualized within the IR and how it connects to the external systems of ORCID and iDigBio.