{"response":{"docs":[{"system_create_dtsi":"2020-01-31T15:08:52Z","system_modified_dtsi":"2020-02-21T00:32:57Z","has_model_ssim":["Medium"],"id":"d504rm78q","accessControl_ssim":["5b5dc05e-e4a3-45fd-9a49-d776a6b13f93"],"hasRelatedMediaFragment_ssim":["0g354g333"],"hasRelatedImage_ssim":["0g354g333"],"depositor_ssim":["koshofae@ucmail.uc.edu"],"depositor_tesim":["koshofae@ucmail.uc.edu"],"title_tesim":["RDAP \"Ask Me Anything\" Townhall webinar \"What is different about Clinical Data?\""],"date_uploaded_dtsi":"2020-01-31T15:08:52Z","date_modified_dtsi":"2020-02-21T00:32:57Z","isPartOf_ssim":["admin_set/default"],"on_behalf_of_ssim":[""],"doi_tesim":["doi:10.7945/1wwj-1f92"],"college_tesim":["Libraries"],"department_tesim":["Research \u0026 Data Services, Data Scien"],"required_software_tesim":["MP4 player, pdf reader, microsoft ppt"],"note_tesim":["The video was recorded using the Webex software."],"creator_tesim":["Koshoffer, Amy","Sloane, Lori D ","Navarro, Christy E ","Exner, Nina"],"publisher_tesim":["University of Cincinnati"],"subject_tesim":["Clinical Data","Research Data","Data Management"],"language_tesim":["English"],"description_tesim":["This webinar was presented to the RDAP community on January 29, 2020 @ 1 pm EST.  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We will also provide resources for further exploration by librarians and patrons.\r\n\r\nAttendees will come away with:\r\n\r\n(1) a better understanding of basic terminology and data workflows in clinical research data management;\r\n(2) a sense of typical workflows that happen with the clinical research data lifecycle;\r\n(3) an introduction to systems in clinical data collection and analysis, particularly REDCAP; and,\r\n(4) at least one answer to the question of “What’s different about clinical?” When it comes to data.\r\nDate: January 29, 2020 @ 1 pm EST\r\n\r\nPresenters:\r\n\r\nNina Exner is the research data librarian at Virginia Commonwealth University, serving both the medical and core campuses. Before joining VCU in 2017, she was a Researcher and Grant Support Services librarian, supporting all disciplines. She received her Master’s in Library Science in 1997 from North Carolina Central University and her Ph.D. in information science from UNC-Chapel Hill in 2019. ORCID 0000-0002-8746-8364\r\n\r\nChristy E Navarro joined UC Davis in August of 2019 as Health Library Informaticist at Blaisdell Medical Library. Prior to that she designed privacy programs for large health systems in California, helped implement ecosystems of research data sharing, developed best practice guidelines in data management, and served as the resource of choice for privacy, data de-identification, and research data questions. She brings 20 years of expertise in healthcare informatics, health information exchange, process improvement, program design, population health improvement, human subject research and patient \u0026 consumer privacy. Christy has a Master of Science in Health Informatics from UC Davis Health and a Bachelor of Science in Business with an emphasis in Management Information Systems from CSU Sacramento.\r\n\r\nLori D Sloane has been working at the University of New Mexico Health Sciences Center since 1990. 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"],"creator_tesim":["Koshoffer, Amy"],"publisher_tesim":["University of Cincinnati"],"subject_tesim":["Data Governance","Research Data","Institutional Policies"],"language_tesim":["English"],"description_tesim":["This webinar was presented to the RDAP community on December 2, 2019 at 12 pm EST.  \r\n\r\nThe goal of the webinar was to hear from the RDAP community about their experiences with institutional research data policies that regulate the ownership, management, and transfer of research data in an institution.\r\n\r\nThe webinar organizing committee was Sophie Hou, Amy Schuler, and Clara Liebot\r\n\r\ninvited panelists were:\r\n\r\nKristin Briney, Biology \u0026 Biochemistry Librarian, Caltech University,\r\nHeather Coates, Digital Scholarship \u0026 Data Management Librarian / Co-Director, Center for Digital Scholarship, Indiana University Purdue University Indianapolis,\r\nAbigail Goben, Information Services and Data Management Librarian Associate Professor, University of Illinois-Chicago,\r\nJonathan Petters, University Libraries Data Management Consultant and Curation Services Coordinator, Virginia Polytechnic Institute and State University.\r\n\r\nBackground/Use Case (provided by Clara Llebot of Oregon State University):\r\n\r\nI work in a research intensive university as the library data management specialist. I have worked occasionally on data policies during my time here, like when we wrote the policy that regulates dataset reviews in our institutional repository. These policies were usually flexible, informative, and a helpful tool for me. Earlier this year I was asked to be part of a committee that would create an institutional research data management policy in our institution.\r\n\r\nI was thrilled that the library was being asked to participate, and at the same time terrified that I had no idea what I was getting into. I have been generally interested in concepts around data ownership, the interactions between copyright and data, decision making regarding research data, etc., but I felt unprepared.An institutional research data policy is, from my perspective, a policy that affects a lot of people, and that has the potential of changing behaviors and research practices in a way that I am definitely not used to. We are still beginning the process of creating the policy, so right now what I have is mostly questions, not answers, about what an institutional research data policy should say.\r\n\r\nMain Discussion Questions:\r\n\r\n 1. Motivations for the policy\r\nIs an institutional research data policy necessary in any institution?\r\nWhat are the issues/gaps that we are trying to address through this policy?\r\nWhat should be the goal of an institutional research data policy?\r\n\r\n2. Roles and responsibilities\r\n Who should be involved in creating this kind of policy?\r\nHow should the faculty be involved in the creation of this policy?\r\n How should a research data policy be enforced?\r\nHow should students be affected by this policy?\r\n\r\n3. Outcomes of existing data policies\r\n What is the type of content addressed in an institutional research data policy? 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